Thursday, September 23, 2010

Remembering Mazha

Today there was no cake. No candles. Just a simple flower arrangement that we laid at the entrance of her hospice room. She would have been 64 today.

To honor her memory, we’ve started “Team Dudek” for the Walk to Defeat ALS that is taking place this fall (October 30, the week before we scatter her ashes). This is an exciting opportunity for us to work together to support those like Kensington's Mazha who are affected by Lou Gehrig's Disease and to spread awareness of the urgency to find treatments and a cure.

No one else like Kensington should have to lose their Mazha to a horrible disease such as ALS. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis... Mazha fought her battle from September 12 (the day she was admitted into the hospital) until Feb 22 (the morning she lost her battle). The frightening thing is every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. All we can say is "enough is enough!"

For a recap of Mazha's fight, visit here and scroll to the last post (bottom of the page) and read that one first.

To make a donation (yes, your $5 really can help!), you can visit "Remembering Mazha"

6 comments:

Kate said...

I have an Aunt who died of ALS- horrible to watch. Happy Birthday to Mazha- RIP!

shandawelchphotography said...

Dear Daddies, I have just stumbled across your blog and I love it. Ive sat here for quite a while now reading old posts. Your little angel is beautiful and just from the reading Ive done I can tell she's been blessed with 2 wonderful daddies. Even though its late, Congratulations! I cant wait to read more

T. Mukherjee said...

Please comment:

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Mom Can I? said...

i stumbled as well - such wonderful words about mazha! i have truly enjoyed feeling your joy and love for your sweet little girl! you are a delighful FAMILY!! good job! can't wait to read more!!! happy thanksgiving
www.momcani.blogspot.com

shauna said...

I'm so sorry for your loss. My grandmother was diagnoses around Thanksgiving and died the following February. The last few days she was not the woman I remembered; it's a horrible disease, and I hope Remembering Mazha sees great success. You're right--no on should ever lose a loved-one to ALS.

Thanks for visiting my blog. I'll have to return and read more about your happy family.

Meredith said...

Hi there,
You commented on my blog about a month ago in re: my sister's death from ALS, and left a link for me to read yours. I was doing reading on my phone, as we do, which isn't a great way to comment. I am so so sorry to hear about your mother's illness and passing. Let's fight this bad disease! And thanks for sharing a link to your story. I enjoy it and I love the idea of 2 loving daddies loving each other and their little girl. Keep it up!